Four Months

Tate has been home four months!

I know!! Where has the time gone?

When I look back at where we were and where we are now, I have a hard time wrapping my mind around it all.

The Lord has blessed these last four months in ways that are hard to fathom.

Tate was the little boy sleeping in a crib in our room, where he slept all night but was usually up around 5:30 a.m.

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He was the little boy that moved happily to his room and big boy bed, but soon after, for weeks, was up over and over all night long just checking to make sure we were still here.

He is now the little boy who is sleeping all night again, and has been trained to sleep until the sunshine is awake – which is somewhere between 7 and 7:30 a.m.

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Tate was the little boy who was constantly doing a little dance and charming moves to show us he was worthy of our love and attention.

He was the little boy who showed indiscriminate affection to anyone and everyone, trying to charm them this same way.

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He is now the little boy who has appropriate interaction with others.

He is now the little boy who will climb into my lap, cuddle with me and say “I luv you-uh, Mommy.”

He is now the little boy who knows our love is unconditional.

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Tate was the little boy who used sign language to ask to eat about every 10 minutes.

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He then would just make a pile of the things he chose.

He would check on his pile over and over and over again, sometimes taking a bite, but usually not.

He is now the little boy who rarely asks to eat, but is secure in knowing that his meals and snacks will be provided for him every single day whether he asks or not.

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Tate was the little boy who had no fear, boundaries, or knowledge of danger.

He is now the little boy who is learning boundaries, and has appropriate fear for his age.

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Tate was the little boy who would grieve, running out the door, through the yard and toward the fields.

This is heart breaking to remember, but such an important part of Tate’s transition.

He is now the little boy who grieves by running into our arms, letting us hold him, kiss him, and reassure him.

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Tate was the little boy who could not have me out of his sight – at all, ever.

He is now the little boy who knows if I am going to leave our home, he will be told, it will be an event, and my return will be celebrated.

He is now the little boy who is not calling my name constantly all day long, nor crying if I leave the room.

He is now the little boy who still gets insecure sometimes, and resorts back to his sign language that is asking to eat, while the tears fall.

Tate is the little boy who used charades when he first arrived home, and we communicated this way.

He is now the little boy who has endless English words, and rarely needs charades.

He is now the little boy who looked at our Christmas tree after it was decorated and said “Wow! Beautiful!”

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Tate was fearfully and wonderfully made by our Lord, our Creator.

He is now the little boy who will have more than one major surgery, probably sooner than we hope.

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He is now the little boy who will have so much to endure medically.

But he is still the little boy who smiles an endless dimply smile, and fills our hearts and home with more joy than we could ever imagine.

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I wonder how we ever lived without you, our sweet boy!

We feel so unworthy of the precious gift from the Lord that you are.

Praise the Lord that you are home!

Four months….just the beginning of our forever.

Christmas Love

Yesterday afternoon Kayla and Clyde joined us to work on getting some Christmas love ready to be mailed!

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Clyde napped while we worked. Isn’t he getting so big?!

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Clyde is starting to smile….and coo!!

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Of course everyone got a turn to love on sweet baby Clyde!!

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It has been so busy around these parts – so hanging out, sipping coffee, and working together was such a blessing!

We, Lord willing, will be decorating our tree tonight!

It is Christmas time!!

Hope you all are enjoying Christmas preparations too!!

*I started an Instagram account – if you would like to follow along, click the camera icon under the “Follow Me” heading on the right side bar of this blog page!

UW Madison

Our trip to UW Madison (American Family Children’s Hospital) and Eliza’s appointments this past Wednesday went very well!

We were thankful for a 9 a.m. start time because that gave us a 6 a.m. departure time from home. We have left home as early as 3:45 a.m. for appointment days before!

Eliza was very excited to have her Daddy and Mommy all to herself! She also was excited because her big sissy, Kayla, had a care package for her that we stopped and picked up as we drove by David and Kayla’s place!

We read books, played busy bags, and played stickers on the ride to Madison.

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Once we arrived and checked in at the diagnostic center, we headed to the playroom to get some fun toys!

Then a nurse took us to the procedure room, and commented right away about Eliza’s disposition – because in her notes it said that last time we had this test done in March, Eliza was very upset and crying before we even got into the procedure room.

We had already brushed Eliza’s skin a couple of times that morning before we arrived, but we did it one more time and also rocked her in the rocking chair before things got started.

No shock to us that Eliza was full of smiles and had so many words!!

Good job, sweet baby!!

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We asked for the sleepy medicine to be ordered in a different form than they normally use – a form that would not have the red dye in it. Eliza reacts negatively to dyes – and we need to make sure she does not get them in medications.

They were able to order the IV form of the medication, and then mix it with a little bit of apple juice to make it taste better.

She drank it down without a blink!

When the nurse took Eliza’s vitals, instead of screaming and flailing like in the past, Eliza would say things like “I can’t like that, it is too scary!” “I don’t want that on my finger – it will be scratchy!” We were able to talk softly to Eliza to reassure her about everything that was happening and she remained very calm!

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The procedure took about two hours. The child life gal was there with things to keep Eliza entertained, and Eliza did SO well!

We also had an appointment to see the urologist. Blake and I learned a lot about what lifetime care will look like for Eliza – and I now feel like we have such a good understanding of the routine care Eliza will need. So thankful!!

We stopped in the lobby to eat lunch out of our cooler (thanks, Addie Mae!). Eliza still did not have her sea legs back. Because we did not put her shoes on, she did not want to get down off the couch anyway, which worked out great!

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Of course we made a stop at the Co-op to grab some treats, and then headed back home. We had a snowy drive on the way there, and were glad that the roads were clear on the way home!

We get to do this all over again with Tate on December 28th! We are starting to confuse the doctors, nurses, and child life specialists when they think they remember us but we show up with a different child!

We are so incredibly thankful for AFCH and everyone that takes care of Tate and Eliza!